ALF Rare Disease Summit
![](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/05/ALF-Rare-Disease-Summit-June-28-29-2022.png)
ALF will bring together rare liver disease stakeholders – patients, caregivers, hepatologists, primary care providers, patient advocacy organization personnel, and industry representatives – for a four-hour virtual Summit to identify solutions for improving the health outcomes of individuals with rare liver diseases. This meeting will focus on answering the following questions:
- How can people avoid misdiagnosis/achieve earlier diagnosis?
- How can we educate more people about genetic testing and best address concerns about stigmatization?
- How can we reduce the patient burden and improve the overall patient experience?
- Can telemedicine play a role?
Event Details
EVENT DATES: Tuesday, June 28th and Wednesday, June 29th
TIME: 1pm-3:30pm EST
![Alexion_Logo](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/Alexion_Logo-300x120.jpg)
![albireopharma-og](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/albireopharma-og-300x158.png)
![DeepGenomicslogo](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/DeepGenomicslogo-300x157.jpg)
![EveryLife](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/03/EveryLife-300x175.png)
![Vertex](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/03/Vertex-300x200.png)
![EveryLifeLOGO_TRANSPARENT_RGB](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/EveryLifeLOGO_TRANSPARENT_RGB-300x175.png)
![Alexion_Logo](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/Alexion_Logo-300x120.jpg)
![albireopharma-og](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/albireopharma-og-300x158.png)
![DeepGenomicslogo](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/DeepGenomicslogo-300x157.jpg)
![EveryLife](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/03/EveryLife-300x175.png)
![Vertex](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/03/Vertex-300x200.png)
![EveryLifeLOGO_TRANSPARENT_RGB](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/EveryLifeLOGO_TRANSPARENT_RGB-300x175.png)
![Alexion_Logo](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/Alexion_Logo-300x120.jpg)
![albireopharma-og](https://alfevents.org/rare-disease-summit/wp-content/uploads/sites/2/2022/04/albireopharma-og-300x158.png)